Chronicles of Noah

Noah, Sleep Apnea, and the CPAP Challenge Ahead

Noah, Sleep Apnea, and the CPAP Challenge Ahead

Noah, Sleep Apnea, and the CPAP Challenge AheadMiriam Wiglesworth
Published on: 06/03/2026

Could poor sleep be the missing piece? Noah's latest diagnosis may explain years of restless nights and challenging days.

Down SyndromeSleep ApneaCPAP TherapyGrowth Hormone DeficiencyKennedy Krieger InstituteSpecial Needs ParentingSleep Study
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When "Small for His Age" Became Something More

When "Small for His Age" Became Something More

When "Small for His Age" Became Something MoreMiriam Wiglesworth
Published on: 05/15/2026

A random conversation in a doctor’s office led us to a diagnosis we never expected and one many DS parents may never think to ask about.

Down SyndromeKennedy Krieger InstituteGrowth Hormone DeficiencyGHDPediatric EndocrinologyMedical TestingDS Community
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The Seizure, the Specialist, and the Showdown

The Seizure, the Specialist, and the Showdown

The Seizure, the Specialist, and the ShowdownMiriam Wiglesworth
Published on: 10/14/2025

What was supposed to be a simple follow-up at Johns Hopkins turned into a negotiation, a strength demonstration, and a reminder that with Noah, even medical visits come with entertainment value. 💪

NoahDown SyndromeJohns HopkinsKennedy Krieger InstituteEEGSeizureParenting humorLife with Noah
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